Patient information workshop pack 1: Setting the scene

The slides and script to the setting the scene workshop.

Title: Table of contents. Text on page in form of list: Slide 1 - Title Page, Slide 3 - Welcome and housekeeping, Slide 4 - Aims, Slides 5-8 - HEE and the PPI picture, Slides 10-12 - Knowledge for healthcare, Slides 13- 22 - Partnerships, Slides 23-36 - PPI task and finish group background and work so far
Table of Contents
Title page for the speaker to fill in with 'title of presentation', 'name of presenter', and 'job title of presenter'
Fill in your details for this title page
Title of slide: Welcome! Subtitle: Housekeeping
Opportunity to sort out any housekeeping
Title: Aims of this workshop. Text on page in list format: We hope you leave today’s workshop with: 1. A better understanding of how LKS staff support the provision of patients and public with information and why we are the right group to do it 2. Increased confidence in your role in patient and public information 3. Increased capabilities to deal with enquiries  4.Quick wins, straightforward actions and ideas for you to make an impact
Aims of this workshop
Images of demographics. Demographics: Demographic one suggests that the UK population is projected to grow 7% to 68 million between 2012 and 2022. Demographic 2 suggests that there will be a 30% increase in the number of people with 3 or more long term conditions by 2020. One condition per year costs £3000, two conditions £6000, three conditions £8000. Demographic 3 states that there are currently 1.5 million people with long-term conditions and they account for 70% of all health spend. Demographic 4 is titled
Demographics

1.5 million people with long-term conditions

There will be a 30% increase in the number of people with 3 or more long-term conditions by 2020

Title: Why do patients and public need health information? Text on page: 1. There are powerful legal, moral, ethical and financial incentives for providing quality information to enable people to better manage their health and wellbeing and make fully informed decisions about their treatment and care. 2. Patients are being encouraged to self-manage, share decision-making and be partners in their own care. 3. Low literacy levels: 42% of working-age adults (aged 16-65) are unable to understand or make use of everyday health information
Why do patients and the public need health information?

NHS libraries are uniquely positioned to help throughout the patient journey

  • Point 1: As NHS Librarians we are used to playing a key role in providing evidence for patient care as part of our service to healthcare staff. Think of all our literature searches, especially those of you who may work as Clinical Librarians. I was often asked for information for consultants to discuss with patients We have skills in finding the evidence, appraising it and making it readily available in formats needed by our healthcare colleagues. We are already partners in patient care.
  • Point 2: We may also need to look at ways of expanding our library services to healthcare staff as they strive to engage with patients with varying literacy levels. Our training skills can be utilised to include facilitating health literacy awareness for all healthcare professionals.
  • Point 3: There is a real need for patients and the public to have access to high quality, reliable health information. As patients are being encouraged to self-manage  and be partners in their care they need access to a range of resources tailored to their literacy level.

Our colleagues in public libraries are already involved in this area.

We in NHS libraries can act as signposts to the information that these groups need to empower them to be active participants in their health and well-being.

The evidence shows that providing high quality health information is beneficial. It has a positive impact on service utilization and health costs, patients’ experience of

healthcare and patients’ health behaviour and status.

Patient engagement is vital to help people manage their health, make informed decisions about their healthcare, and mitigate financial pressure on the health service.

So in the current crisis patient information and self management may be one of the keys to reducing demand.

Title: Health Education England. Text on page: HEE’s purpose is to improve the health and wellbeing of the people of England by developing a workforce  with the right skills and values to always deliver outstanding healthcare: 1. We deliver workforce reform 2. we support workforce transformation 3. we commission new staff 4. we develop existing workforce through reskilling and upskilling
Health Education England
Title: NHS funded library andknowledge services. Text on page: 1. Financial investment and strategic leadership comes from HEE, through four regions  2. Funding for the 215 NHS funded healthcare Library and Knowledge Services in England comes from HEE via four regions 3. Their mission is to play a pivotal role in helping the NHS to improve the quality of patient care and become more productive and efficient
NHS funded library and knowledge services
Text on page: Library and knowledge services staff are... Uniquely positioned to provide healthcare information to the public and patients 1. Play a key role in providing evidence for patient care as part of our service to healthcare staff 2. Skills in finding the evidence, appraising it and making it readily available in formats needed by our healthcare colleagues. 3. Can use these same skills in our interactions with the public, patients and carers 4. Can act as signposts to the information that the public, patients and carers need to empower them to be active participants in their health and well-being 5. Training skills can be utilised to facilitate health literacy awareness
Library and knowledge services staff are...
Title card: Knowledge for Healthcare
Knowledge for Healthcare
Text on page: full framework and short briefing available on HEE website link in notes
About Knowledge for Healthcare
Title: An ambitious vision. Text on page: Our vision- NHS bodies, their staff, learners, patients and the public use the right knowledge and evidence, at the right time, in the right place, enabling high quality decision-making, learning, research and innovation to achieve excellent healthcare and health improvement. There is often a large gap between evidence-based treatment guidelines and current practice (Nolte and McKee, 2008)
An Ambitious Vision

Therefore, there is much to do to achieve this vision

Title: Partnerships are central. Text on page: Health Education England is committed to: 1. learning from and partnering with other organisations across different sectors 2 to strengthening working relationships across the library community. Image alongside Knowledge for healthcare flower diagram. Knowledge for healthcare is in the middle with each petal of the flower labelled with different KfH priorities. Petals called: 'mobilising evidence and organisational knowledge', 'service transformation', 'patients, carers, and the public', 'resource discovery', 'quality and impact', and 'workforce planning and development'
Partnerships are central
Title: Current partnerships within PPI. List of partnerships: Public Health England, NHS England, NHS Digital, Health Education England, Society of Chief Librarians, Reading Agency, Patient Information Forum, Macmillan, and many more...
Current partnerships within PPI

We have representatives from these organisations on the PPI Working Group and we are working closely to make the most of existing resources and avoid duplication.

In the next slides we will say a bit more about some of these organisations. 

Images of logos of partnerships from previous slide
More partnerships
Text on page: Public health england exists to protect and improve the nation's health and wellbeing, and reduce health inequalities. Part of this involves facilitating access to good quality consumer health information, so that the general public can manage their health more effectively. The PHE Knowledge and Library Service does this by providing: 1. Workshops for: Public libraries, Local authorities, NHS England Information Standard information providers 2. A flow chart of levels of evidence for patient information providers 3. Guides to finding the evidence for Organisations which produce patient information products Health inequalities
Public Health England
Text on Page: NHS England leads the National Health Service (NHS) in England. NHS England leads the National Health Service (NHS) in England.  They set the priorities and direction of the NHS and encourage and inform the national debate to improve health and care. 1. The Information Standard - a highly regarded, voluntary certification scheme for  health and social care information.https://www.england.nhs.uk/tis/ 2. The Accessibility Information Standard – compulsoryLKS staff should know your organisation’s policy on AIS and where to go for information in different formats; add a field to enquiry forms to ask what format is required; raise awareness of the AIS with other staff. https://www.england.nhs.uk/ourwork/accessibleinfo/
NHS England
Text on page: 1. Goal is to improve health and social care in England by making better use of technology, data and information 2. With partners across the country, they support the health and care system, helping patients make good choices about their care while ensuring their data is kept safe 3. They are responsible for NHS Choices
NHS Digital
Title: Society of Chief Librarians. Text on page: 1. 'Public Library Health Offer' articulates the role that libraries can play in promoting the health & wellbeing of local communities 2. Public libraries are clear about their role in signposting the public to quality resources whilst not providing medical advice or guidance. 3. Public library staff have customer service and enquiry skills to help the public find information but would value more specialised health training from NHS Librarians 4. NHS librarians would value customer service skills used by public library staff. 5. Opportunities for joint working and sharing of expertise and resources
Society of Chief Librarians

Please note, not every public library will be offering exactly the same projects/information. Invite an external speaker from your local Public Library to present what they are doing to support health and wellbeing in the community. Please provide contact details of the regional SCL lead so that attendees have the opportunity for partnership working. (Ask [email protected] for contacts)

Other areas where Public Libraries may provide advantages partnerships;

Customer service skills (dealing with members of the public rather than our usual users)

Joint training sessions

Book exchanges (Public Library book collections in NHS Libraries)

Text on page: 1. Reading Well Books on Prescription and subsequent book lists 2. Health benefits of reading and reading groups 3. NHS Librarian involved in developing BoP Long Term Conditions list for July 2017
The Reading Agency

Reading Well Books on Prescription was launched in 2013 to support people with common mental health diagnoses, such as depression and anxiety. Reading Well is available in 91% of English public library authorities and can either be accessed by ‘self-referral’ ( a library user choosing a book on their own) or by being ‘prescribed’ by a health professional. There are approx. 7000 prescribers in England. This was followed by further reading lists; mood boosting books, ‘Shelf Help’ for teens and young adults and a dementia reading list. The Reading Agency are currently compiling a new list on Long Term Conditions (due June 2017), which an NHS librarian is helping to shortlist. Many Public Libraries provide supplementary services alongside these collections. (Statistics taken from readingagency.org.uk )

Many NHS Libraries already hold a collection or collections of Reading Well stock

Title: Patient Information Forum (PIF). Text on page: 1. PIF is a UK membership organisation, and network, for people working in, and involved with, healthcare information and support. 2. Guides, tools and resources. 3. Regular events
Patient Information Forum (PIF)
Title: Macmillan Cancer Support Text on page: 1.Breadth of information and support services (local cancer information and support services, Macmillan Support Line etc.) 2. Breadth of information resources (print, digital, British Sign Language, Braille etc.) 3. Accessing content to use in enquiries 4. Signposting for support 5. Partnership options 6. Member of the K4H PPI steering group Find your local Macmillan contact on their website (link in image description)
Macmillan Cancer Support

Invite a member of Macmillan to present to the group. Other areas where they can support NHS Libraries health information provision:

Communication with patients

Dealing with enquiries

Judging the level of literacy required

Giving information not advice

Provide contact details of local Macmillan name for partnership working

www.macmillan.org.uk/

Title: KfH Patients and Public Information Workstream
KfH Patients and Public Information Workstream
Title: Task and Finish group: Year 1 2015-16 Text on page: The Patient and Public Information Task and Finish Group came together as part of the Service Transformation workstream of Knowledge for Healthcare. Since our inception we have: 1. identified, started and developed partnerships 2. created Guidance to support NHS Libraries and their staff to get involved with patient and public information 3. created the Ideas Bank to share and publish what is already happening around England to support the PPI agenda
Task and Finish group: Year 1 2015-16
Text on page: Getting involved in Patient Information does not mean hordes of patients making their way to the library!
Guidance

The Guidance was published in March 2016 and was updated in Dec 2016.

The main comments received were “our library cannot be accessed by patients” Let’s have a look at what’s in the guidance and how it could help you.

Title: What’s in the Guidance for you? Text on page: 1. Specifically for all NHS Library and Knowledge Service staff 2. Rationale for NHS libraries getting involved with the PPI agenda 3. Types of service you could offer 4. Advice on dealing with enquiries 5. Links to the Ideas Bank and case studies 6. List of links to websites, key documents and signposts to patient information
What’s in the Guidance for you?
Title: Types of Service. Text on page: 1. Facilitating healthcare staff to provide patient information 2. Walk in reference use of print resources 3. Enquiry service 4. Collaboration with local public library service 5. Facilitating patient / public health literacy 6. The library as a public space
Types of Service

Use guidance to talk through these. and then add some personal comment about each

  1. Facilitating healthcare staff to provide patient information - Libraries contributing to Information Standard Accreditation, evidence for patient leaflets, Health Information Week support, training on health literacy, training for volunteers 
  2. Walk in reference use of print resources
    PERSONAL EXPERIENCE: Patient wanted a fiction book while an in patient . He walked in with drip attached on trolley! Issued this to him. He left it with ward staff when discharged but grateful and perhaps we helped improve his patient experience.
  3. Enquiry service, for example a patient asking for information on Parkinson's and exercise. Leaflet on quality health information on the internet which we give out. We would use the information from NHS Choices and print this for them.
  4. Collaboration with local public library service - Many NHS Libraries already have Public Library stock, information sharing meetings, joint training or events. 
  5. Facilitating patient / public health literacy - NHS Libraries have developed patient reading groups, become involved in literacy training, run training sessions for users on search techniques, provide displays for awareness weeks.
  6. The library as a public space
    PERSONAL EXPERIENCE: Library now signposted from concourse , we have patients come in to sit and read the paper.This has meant that if staff want to answer their bleeps we do direct them to the office rather than let then use the desk phone. Some staff have asked use about issues around ward staff not knowing were patients are but this is no different to patients who leave the wards to visit the hospital shops or cafes. If you are concerned you could always ask the patient if they re ok. I sometimes do.
Title: Ideas bank. Text on page: 1. List of ideas for LKS staff with links to further information, case studies and support 2. Published in November 2015 3. Used Sally Hernando innovations, HLG conference abstracts & LQAF submissions 4. Updated Jan 2017 and regularly reviewed
Ideas Bank

This was the result of our initial scoping exercise and some comments made during a Twitter event on PPI.

We collated examples for LQAF returns , HLG conferences and Sally Hernando innovations. It is a main section in the guidance.

We have used it as a key resource with our stakeholders to showcase the work that NHS libraries are already engaged in. Most have asked to have copies of it. So how can it help you. lets look at some examples

Highlight some examples to quote

Do visit the KfH website and explore if you haven't looked at it

Title: Patients and Public Information Workstream Year 2 2016-17. Text on page: Membership has expanded into 4 Task & Finish groups and a Steering Group.  The Steering Group has objectives to: 1. formalise national partnerships 2. promote the PPI learning materials and resources through our partners 3. promote health literacy; actively engage with partners and senior stakeholders to do this
Patients and Public Information Workstream Year 2 2016-17

The next few slides will go into more detail about the Task & Finish Groups

Title: Year 2 2016-17 TaF Group 2 Text on page: Key objectives: 1.  Communicate the standards required of all NHS organisations in providing high quality information for the public, patients and carers. 2. Advocate the ways in which library and knowledge staff can assist healthcare organisations to meet their responsibility to provide high quality information to their patients and carers
Year 2 2016-17 TaF Group 2
Title: 2016-17 TaF Group 2 Progress. Text on page: Document: The Standards Required for Health Information including: How LKS staff can get involved in their Trust’s Information Standard application. Case studies from library staff who have been involved in Information Standard and associated activities Driver summaries: Using the MAP Toolkit to compile national drivers which will support involvement of LKS  in patient and public information projects.  All outputs are published on the KfH website
2016-17 TaF Group 2 Progress
Title: Year 2 2016-17 TaF Group 3. Text on page: Key objectives: Encourage and support development of local networks of health information providers.  Work with NHS Choices to ensure that training is available to healthcare library and knowledge services staff. Develop materials for regional meetings and workshops to engage and support healthcare library and knowledge services staff including the ideas bank and guidance
Year 2 2016-17 TaF Group 3
Title: 2016-17 TaF Group 3 Progress Text on page: Guidance on forming partnerships and networks including supporting documents: MOU and TOR published PPI Contacts Database – list of local contacts from many sectors and organisations  NHS Choices Guide has been published Workshop materials: Powerpoint slide pack, activity sheets, workshop programme, evaluation form  All outputs published on the KfH website
2016-17 TaF Group 3 Progress

MOU = Memorandum of Understanding

TOR = Terms of Reference

Title: NHS Choices. Text on page: NHS Choices provides a comprehensive health information service with thousands of articles, videos and tools, helping visitors to make decisions about their health and lifestyle, but also about making the most of NHS and social care services in England. Guidance on utilising NHS Choices efficiently is now available on the Knowledge for Healthcare PPI pages For LKS staff to know how to use to support patients asking for health information, but also to support your users who need high quality patient information
NHS Choices

Optional: NHS Choices activity session - If tablet/laptop available per table – set tasks to find specific information – competition to use least clicks. Or could set as pre-workshop task and participant with least clicks on a search can demonstrate how they did it

Title: Year 2 2016-17 TaF Group 4 Text on page: Key objectives; Develop guidance and resources to support those healthcare library and knowledge services staff that directly provide the public, patients and carers with high quality health and wellbeing information. Identify appropriate CPD interventions for healthcare library and knowledge staff working directly with the public, patients and carers e.g. in-house customer care training for front line staff.
Year 2 2016-17 TaF Group 4
Title: 2016-17 TaF Group 4 Progress. Text on page: Guidance updated Ideas Bank updated and some new ideas added Training materials identified and shared on the KfH website – request for LKS staff to suggest other resources to add Used the Training Needs Analysis to assess requirements and identify any gaps in current training availability. All outputs are published on the KfH website TaF Group 1 has been initiated to develop additional training for LKS staff
2016-17 TaF Group 4 Progress
Text on page: Any questions?
Questions?